Ethnic Backgrounds Research Articles

Mediation in the Relation of Orthographic Processing on the Lexical and Sublexical Level with Reading and Spelling Skills. A Large Cross-Sectional Study in Elementary School Children in Germany

ABSTRACT Purpose Two types of orthographic knowledge were examined: i) knowledge of permissible letter combinations (general orthographic knowledge) and ii) knowledge of whole words (word-specific orthographic knowledge), to gain further insights into the relationship of general and word-specific orthographic knowledge with literacy skills. Method Mediation models were estimated using a sample of 2,636 3rd and 4th grade children (50.6% female, ethnic backgrounds were not surveyed) to examine whether general orthographic knowledge predicts reading fluency and spelling performance and whether this path is mediated by word-specific orthographic knowledge. Using confirmatory factor analyses (CFA), we examined whether the responses to correctly spelled words/legal letter patterns and pseudohomophones/illegal letter patterns in word-specific and general orthographic knowledge tasks were generated by separate latent constructs. Results Our results confirm that word-specific orthographic knowledge is a facilitatory mediator in the relationship between general orthographic knowledge and literacy skills. The relationship of general and word-specific orthographic knowledge with literacy skills varies by item type, with a tendency toward higher correlations between literacy skills with pseudohomophones (vs words) and illegal (vs legal) pseudowords, which is in line with the two-factor solution of the CFA. Conclusion From a theoretical perspective, we conclude that general orthographic knowledge facilitates orthographic learning of words. From a methodological perspective, we encourage future researchers to distinguish between targets and foils in orthographic decision tasks.

A Qualitative evaluation in community settings in England exploring the experiences of coaches delivering the NHS Low Calorie Diet programme pilot to ethnically diverse participants

BackgroundThe management of type 2 diabetes (T2D) within diverse ethnic populations requires a culturally tailored approach. However, little is known about the experiences of coaches delivering interventions for T2D, such...

Characterizing "collateral damage" in men and women with metastatic breast cancer (mBC) from diverse racial and ethnic backgrounds in New York City.

Patients from diverse racial, ethnic, and socio-economic backgrounds may be particularly vulnerable to experiencing undue social and financial burdens ("collateral damage") from a metastatic breast cancer (mBC) diagnosis; however, these challenges have not been well explored in diverse populations. From May 2022 to May 2023, English- or Spanish-speaking adults with mBC treated at four New York-Presbyterian (NYP) sites were invited to complete a survey that assessed collateral damage, social determinants of health, physical and psychosocial well-being, and patient-provider communication. Fisher's exact and the Kruskal-Wallis rank-sum tests assessed differences by race and ethnicity. Of 87 respondents, 14% identified as Hispanic, 28% non-Hispanic Black (NHB), 41% non-Hispanic White (NHW), 7% Asian American Pacific Islander (AAPI), and 10% other/multiracial. While 100% of Hispanic, NHW, and AAPI participants reported stable housing, 29% of NHB participants were worried about losing housing (p = 0.002). Forty-two percent of Hispanic and 46% of NHB participants (vs. 8%, NHW and 0%, AAPI, p = 0.005) were food insecure; 18% of Hispanic and 17% of NHB adults indicated lack of reliable transportation in the last year (vs. 0%, NHW/AAPI, p = 0.033). Participants were generally satisfied with the quality of communication that they had with their healthcare providers and overall physical and mental well-being were modestly poorer relative to healthy population norms. In our study, NHB and Hispanic mBC patients reported higher levels of financial concern and were more likely to experience food and transportation insecurity compared to NHW patients. Systematically connecting patients with resources to address unmet needs should be prioritized to identify feasible approaches to support economically vulnerable patients following an mBC diagnosis.

Documentation of social determinants of health across individuals from different racial and ethnic groups in home healthcare.

Home healthcare (HHC) enables patients to receive healthcare services within their homes to manage chronic conditions and recover from illnesses. Recent research has identified disparities in HHC based on race or ethnicity. Social determinants of health (SDOH) describe the external factors influencing a patient's health, such as access to care and social support. Individuals from racially or ethnically minoritized communities are known to be disproportionately affected by SDOH. Existing evidence suggests that SDOH are documented in clinical notes. However, no prior study has investigated the documentation of SDOH across individuals from different racial or ethnic backgrounds in the HHC setting. This study aimed to (1) describe frequencies of SDOH documented in clinical notes by race or ethnicity and (2) determine associations between race or ethnicity and SDOH documentation. Retrospective data analysis. We conducted a cross-sectional secondary data analysis of 86,866 HHC episodes representing 65,693 unique patients from one large HHC agency in New York collected between January 1, 2015, and December 31, 2017. We reported the frequency of six SDOH (physical environment, social environment, housing and economic circumstances, food insecurity, access to care, and education and literacy) documented in clinical notes across individuals reported as Asian/Pacific Islander, Black, Hispanic, multi-racial, Native American, or White. We analyzed differences in SDOH documentation by race or ethnicity using logistic regression models. Compared to patients reported as White, patients across other racial or ethnic groups had higher frequencies of SDOH documented in their clinical notes. Our results suggest that race or ethnicity is associated with SDOH documentation in HHC. As the study of SDOH in HHC continues to evolve, our results provide a foundation to evaluate social information in the HHC setting and understand how it influences the quality of care provided. The results of this exploratory study can help clinicians understand the differences in SDOH across individuals from different racial and ethnic groups and serve as a foundation for future research aimed at fostering more inclusive HHC documentation practices.

Supporting healthcare professionals from ethnic minority backgrounds to ‘Step Into’ a clinical academic career

Supporting healthcare professionals from ethnic minority backgrounds to ‘Step Into’ a clinical academic career

Commentary: Supporting healthcare professionals from ethnic minority backgrounds to ‘Step Into’ a clinical academic career

Commentary: Supporting healthcare professionals from ethnic minority backgrounds to ‘Step Into’ a clinical academic career

GATA genotype and FY*B(-67T>C) polymorphism as a cheap and reliable tool to evaluate ethnicity in Brazilian patients submitted to autologous transplantation

Abstract Collecting high quality data on race and ethnicity is crucial for clinical research, notably in genetic association studies, to avoid confounding by different ethnic background among patients, a bias referred to as population stratification. In Brazil, to describe race we commonly use the National Institute of Geography and Statistics (IBGE) classification, so-called “self-declared color”, but it is acknowledged that defining ancestry by phenotypic characteristics, especially in countries with highly mixed population like Brazil, can be misleading. We aimed to evaluate the relationship between the GATA FY*B(-67T>C) polymorphism and self-declared race in Brazilian patients undergoing autologous transplantation and verify the feasibility of using this test as a more reliable tool to evaluate ethnicity in this population. Methods: We conducted a study to evaluate the association of candidate-gene polymorphisms and toxicities after autologous stem-cell transplantation (ASCT) in adult patients with lymphoma or myeloma from 2015 to 2021 in two Brazilian transplant centers. All patients with available DNA to study genetic polymorphisms were included. In this analysis we evaluate the association between GATA polymorphism and self-declared color in this cohort. Results: A total of 217 patients were included in this analysis. Median age at transplantation was 56 years (21-79) and 130 patients (59.9%) were male. Most patients were self-declared white (n=175, 80.6%) and the most common genotype was GATA67T/T (wild type/wild type) (n=142, 65.4%). Among the self-declared white patients, 73.1% were genotyped as GATA67T/T and 4.0% as GATA-67C/C, while among the non-white patients 21.4% were genotyped as GATA-67C/C (p<.001). The allele FY*B(-67T>C) frequency was 0.22 in the whole population; it was identified in 26.9% of the self-declared white patients and in 66.6% of the non-white (p<.001). Twelve-month overall survival was 86.6% (95% CI 79.9 - 91.2%), with no difference according to self-declared race (86.8% vs 85.5% for white and non-white patients, respectively, p=0.81) or the presence of the allele FY*B(-67T>C) (85.2% vs 89.9% for non-mutated and mutated patients, respectively, p=0.27). Conclusion: GATA FY*B(-67T>C) polymorphism is associated to self-declared race in Brazilian patients submitted to ASCT. Given the importance of correctly evaluating ancestry in genetic association studies in transplantation, GATA FY*B(-67T>C) polymorphism can be used as a more accurate tool in populations with mixed ethnic/racial background.

Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops.

Inequalities in access to palliative and end of life care are longstanding. Integration of primary and palliative care has the potential to improve equity in the community. Evidence to inform integration is scarce as research that considers integration of primary care and palliative care services is rare. To address the questions: 'how can inequalities in access to community palliative and end of life care be improved through the integration of primary and palliative care, and what are the benefits?' A theory-driven realist inquiry with two stakeholder workshops to explore how, when and why inequalities can be improved through integration. Realist analysis leading to explanatory context(c)-mechanism(m)-outcome(o) configurations(c) (CMOCs). A total of 27 participants attended online workshops (July and September 2022): patient and public members (n = 6), commissioners (n = 2), primary care (n = 5) and specialist palliative care professionals (n = 14). Most were White British (n = 22), other ethnicities were Asian (n = 3), Black African (n = 1) and British mixed race (n = 1). Power imbalances and racism hinder people from ethnic minority backgrounds accessing current services. Shared commitment to addressing these across palliative care and primary care is required in integrated partnerships. Partnership functioning depends on trusted relationships and effective communication, enabled by co-location and record sharing. Positive patient experiences provide affirmation for the multi-disciplinary team, grow confidence and drive improvements. Integration to address inequalities needs recognition of current barriers. Integration grounded in trust, faith and confidence can lead to a cycle of positive patient, carer and professional experience. Prioritising inequalities as whole system concern is required for future service delivery and research.

Ethnicity, culture and human development of Bangladesh’s tea workers

ABSTRACT This study sets out to investigate the human development situation of ethnic tea workers in Bangladesh against the underpinnings of human development theories by employing a qualitative research approach. We collected data for this study from people of diverse ethnic backgrounds and identities through in-depth interviews, focus group discussions, and direct observation. The study finds that human development of ethnic tea workers is extremely constrained by the lack of their freedom and adequate income, which is systematically created by the tea planters to serve their business interests. Tea workers’ social isolation from the mainstream Bangladeshi society, coupled with their traditional social life and poor socioeconomic conditions, also manufactured by the regulatory systems, remains the significant marker for the deterrent of their human development. Different traditional beliefs, rituals and practices of these ethic communities are also spotted as contributing factors for their poor human development situation, forcing them to sustain the legacy of working-class status of their predecessors and wind up in the tea plantations for generations.

The lived experience of mental disorders in adolescents: a bottom-up review co-designed, co-conducted and co-written by experts by experience and academics.

We provide here the first bottom-up review of the lived experience of mental disorders in adolescents co-designed, co-conducted and co-written by experts by experience and academics. We screened first-person accounts within and outside the medical field, and discussed them in collaborative workshops involvingnumerous experts by experience - representing different genders, ethnic and cultural backgrounds, and continents - and their family members and carers. Subsequently, the material was enriched by phenomenologically informed perspectives and shared with all collaborators. The inner subjective experience of adolescents is described for mood disorders, psychotic disorders, attention-deficit/hyperactivity disorder, autism spectrum disorders, anxiety disorders, eating disorders, externalizing disorders, and self-harm behaviors. The recollection of individuals' past histories also indexes the prodromal (often transdiagnostic) features predating the psychiatric diagnosis. The experience of adolescents with mental disorders in the wider society is described with respect to their family, their school and peers, and the social and cultural context. Furthermore, their lived experience of mental health care is described with respect to receiving a diagnosis of mental disorder, accessing mental health support, receiving psychopharmacological treatment, receiving psychotherapy, experiencing peer support and mental health activism, and achieving recovery. These findings can impact clinical practice, research, and the whole society. We hope that this co-designed, co-conducted and co-written journey can help us maintain our commitment to protecting adolescents' fragile mental health, and can help them develop into a healthy, fulfilling and contributing adult life.

Exploration of Dementia Help Seeking Behaviours Amongst UK South Asian Communities: A Systematic Review

In the UK, 25,000 people from ethnic minority background live with dementia. Although dementia associated risk factors are common amongst South Asians, they tend to present at services later and when in crisis. This review explores UK South Asian communities perception of dementia to understand factors impacting their decision to seek help. Search terms assisted by the PICO strategy were inputted into five databases and ten qualitative papers identified. Meta-ethnography methodological framework was implemented for analysis. Four overarching understandings were identified: unfamiliarity with dementia (related to carers initial interpretation of dementia symptoms as normal ageing), cultural expectations to provide care (influenced by communities believes), services not being able to meet cultural needs impacted carers from seeking help and protective factors (religion and community belonging appear to help carers manage their needs). Carers decisions to seek help from dementia services were often influenced by cultural norms and negative experiences of services. They, consequently, turned to alternative approaches to best suit meet their needs. Understanding South Asian’s carers dementia help seeking behaviour would help services adapt and cater appropriately for service users’ needs.

Measuring impact: a prospective evaluation of a mentoring scheme for aspiring clinical psychologists from black, Asian and Minority Ethnic backgrounds

ABSTRACT Mentoring schemes for aspiring BAME clinical psychologists, are being introduced in universities across the UK. The aim of this study was to conduct a mixed-methods prospective evaluation of the 2021/2022 mentoring scheme. Mentees (n = 8) and mentors (n = 20) completed an online questionnaire at the beginning (T1) and end (T2) of the 2021/2022 mentoring scheme. Quantitative data was analysed descriptively and using a mixed ANOVA. Content analysis was conducted on qualitative contributions. Mentees reported having the confidence and knowledge necessary to apply for the clinical psychology doctorate and assessments of mentoring skills were high. Participants provided their goals and expectations for the scheme, as well as constructive feedback. The findings suggest an overall modest, positive impact of the mentoring scheme. Wider implications include ensuring mentoring pairs establish regular contact and providing additional support for mentors to mitigate self-doubt.

Uncovering social assimilation disparities: immigrants’ volunteering in associations

ABSTRACT This study examines how much immigrants from different country of origin groups assimilate to native-level volunteering in organizations in Denmark. We employ multilevel linear probability models, analyzing a dataset that combines repeated cross-sectional survey data with administrative register information. The dataset encompasses 15,771 respondents, of which 1,918 are immigrants from 127 different countries. Unlike recent European comparative research that has suggested that immigrants of all ethnic backgrounds ultimately reach parity with natives in their levels of civic participation in their destination countries, our findings reveal a different scenario in Denmark. Our results suggest that immigrants from predominantly Protestant and other Christian countries reach parity with natives in their level of volunteering, while immigrants from other countries do not. We show that socioeconomic disparities across immigrant groups partially account for these variations in volunteering assimilation, but even after accounting for socioeconomic factors and many other covariates, significant differences persist.

Distribution of mitochondrial MT-RNR1, MT-TL1, MT-TS1, MT-TK and MT-TE genes variants associated with hearing loss in Southwestern China

BackgroundMaternally inherited hearing loss has been associated with mitochondrial genes, including MT-RNR1, MT-TL1, MT-TS1, MT-TK and MT-TE. Among these genes, MT-RNR1 is known to be a hotspot for pathogenic variants related to aminoglycoside ototoxicity and nonsyndromic hearing loss. However, the frequency and spectrum of variants in these genes, particularly in multi-ethnic hearing loss patients from Southwestern China, are still not fully understood. MethodsIn this study, we enrolled 460 hearing loss patients from various ethnic backgrounds (Han, Yi, Dai, Hani, etc.) in Southwestern China. Next-generation sequencing was used to analyze the mitochondrial MT-RNR1, MT-TL1, MT-TS1, MT-TK and MT-TE genes. Subsequently, bioinformatical methods were employed to evaluate the identified variants. ResultsAmong the patients with hearing loss, we identified 70 variants in MT-RNR1 (78.6 %, 55/70), MT-TL1 (4.3 %, 3/70), MT-TS1 (4.3 %, 3/70), MT-TK (7.1 %, 5/70) and MT-TE (5.7 %, 4/70) genes. We found that 15 variants were associated with hearing loss, including m.1555 A > G and m.1095 T > C. Additionally, we discovered three reported mitochondrial variants (m.676 G > A, m.7465 insC, and m.7474 A > G) newly correlated with hearing loss. Notably, certain pathogenic variants, such as m.1555 A > G, displayed non-consistent distributions among the multi-ethnic patients with hearing loss. Furthermore, the number of variants associated with hearing loss was higher in the Sinitic group (n = 181) and Tibeto-Burman group (n = 215) compared to the Kra-Dai group (n = 38) and Hmong-Mien group (n = 26). ConclusionsThis present study revealed the distribution of mitochondrial variants linked to hearing loss across various ethnic groups in Southwestern China. These data suggest a potential correlation between the distribution of mitochondrial variants associated with hearing loss and ethnic genetic backgrounds.

Towards social equity and sustainable economic prosperity through ecotourism: A case of caste diversified community along Annapurna Sanctuary trail (AST), Nepal

The key to social equity and sustainable economic prosperity rests on the inclusion of diverse socio-cultural and ethnic groups in socio-economic activities. Ecotourism promotes the fair and equitable sharing of available opportunities among local people to ensure social equity, sustainable economic prosperity, and tourism sustainability. This study presents an analysis of how ecotourism has contributed to social equity and sustainable economic prosperity within multicultural communities in three villages: Ghandruk, Landruk, and Dhampus along the Annapurna Sanctuary Trail (AST) in Nepal, through the lens of the local community with 120 face-to-face questionnaire surveys, five key informant interviews, six focus group discussions, and field observations. Ecotourism is found to be an effective mechanism for fostering social equity and economic prosperity through socio-economic empowerment, particularly among marginalized groups such as women, Dalits, and Janajatis through the reduction of gender-based income disparities, increased access to micro-financial services, enhanced social cohesion, and increased participation in decision-making processes. Furthermore, the study reveals that households from diverse castes and ethnic backgrounds have benefitted from ecotourism through various income-generating activities, including the sale of local handicrafts and agricultural products, leasing land and property, and infrastructure development. However, it also identifies challenges such as rising living costs, land prices, abandoned agricultural lands, and income inequality. For the sustainability of ecotourism in the region, the need for regulatory measures to control local prices, and integrate agricultural activities into tourism experiences is proposed. Additionally, it emphasizes the importance of engaging marginalized groups, particularly Janajatis and Dalits, in ecotourism development initiatives.

Exploring cultural dynamics of Black Asian Minority Ethnic (BAME) women in addiction recovery: a comparison of three women from different ethnic backgrounds

Background The existing recovery capital (RC) literature primarily focuses on white males. This study aims to fill this gap by exploring addiction recovery among three culturally diverse UK women, utilizing CHIME-D (Connectedness, Hope/Optimism, Identity, Meaning, Empowerment, and Difficulties) and RC frameworks. It seeks to compare their recovery paths, combining quantitative data with lived experiences, and barriers specific to women in recovery. Methods The article will deploy a case study design involving a mixed methods approach to explore recovery pathways and resulting RC, based on in-depth interviews and recovery capital assessments with three women from white, black and Asian ethnic backgrounds. Results While one of the three participants, reports very strong and positive RC on the REC-CAP, the other two are at a much earlier stage in their journey. In contrast to the white female participant, who lacks personal RC and has significant barriers around ongoing substance use, the Black and Asian Minority Ethnic (BAME) participants report cultural challenges and difficulties engaging with mainstream services. Conclusion Recovery is a personal and individualized journey, but one that is predicated on social support, belonging and access to cultural and community resources. For BAME participants, accessing and engaging with appropriate peer support is essential in building RC and fulfilling the requirements of CHIME.

Child language brokering in Turkey: non-professional interpreting experiences from Kurdish, Arab, and Pomak ethnic minorities

ABSTRACT This research unveils retrospective child language brokering experiences within local ethnic minorities in Turkey. Employing a multiple-case study research design, the investigation delves into the brokering experiences of three adult participants from diverse ethnic backgrounds – Kurdish, Arab, and Pomak communities. The semi-structured interviews shed light on individual encounters, including primary motivations and settings for brokering, employed translation strategies, perceived impacts of brokering, and the normativity of child language brokering. They also illuminate the societal positioning of these ethnic minorities, especially minority women, within Turkey and the prevailing state policies affecting minority language rights. The findings obtained are discussed in connection with a nuanced exploration of the contextual and historical dimensions surrounding these ethnic minorities. In this sense, departing from the prevailing focus on child language brokering within immigrant families, this research redirects attention to brokering practices among local ethnic minorities. Beyond the preliminary exploration of child language brokering in Turkey, this study is an early investigation into non-professional interpreting activities among ethnic minorities residing in the country. The study also generates implications that intersect the domains of public service interpreting and politics.

Brain, behavior, cognition, and physical health in first-onset adolescent anorexia nervosa: The BRAVE Study design and cohort profile

Background Anorexia nervosa is a severe psychiatric disorder with a heterogeneous course with one of the highest rates of morbidity and mortality of all psychiatric disorders. Little is known about factors that predict both course and treatment outcomes of this disorder. The BRAVE Study is a longitudinal first-onset anorexia nervosa cohort study focusing on four topics of interest in girls only: (1) behavior, (2) neurobiology, (3) cognitive functions, and (4) physical health. Objective The goal of this paper is to introduce the BRAVE Study. The primary aim of the BRAVE Study is to identify predictors of treatment response in a large sample of 12-to-22-year-old females with first-onset typical or atypical anorexia nervosa. The second aim is to longitudinally investigate the association between clinically significant changes in eating disorder symptoms with the underlying behavioral, neurobiological, cognitive and physical health changes. The results of this study will allow us to develop more precise treatment strategies in order to provide more optimal treatment. Methods and analysis The BRAVE Study implements a longitudinal case-control design. Study recruitment was designed within a collaborative network of 16 Dutch mental health organizations, each with expertise in the diagnosis and treatment of patients with anorexia nervosa. After obtaining informed consent, assessments were performed at baseline and one-year follow-up. Patients with anorexia nervosa received treatment as usual. The primary outcome measures at one year are restoration of weight and a reduction of eating disorder symptomatology. Predictive measures include neurobiological, cognitive, behavioral and physical health measures. Sample description In the BRAVE Study 79 girls with anorexia nervosa and 75 typically developing girls were included between May 2017 and October 2021. This period of time partially overlapped with the COVID-19 pandemic. 72% of the girls with anorexia nervosa and 88% of the typically developing girls also completed measurements at follow-up. The mean time between data collections points was 13 months. The groups were comparable in education level of their mothers, neurodevelopmental disorders, and ethnical background. The girls with anorexia nervosa were slightly younger than the typically developing girls. Conclusion The BRAVE Study aligns with one of the most important study priorities in the field of anorexia nervosa by examining (i) predictors of treatment response and (ii) investigating how symptoms with eating disorder symptoms track with changes in neurobiological, cognitive, behavorial and physical health functioning. Moreover, the study is innovative by its longitunal case control design, relatively large study sample and broad selection of measures.

OP v Commune d’Ans: Another Step in the Wrong Direction for Headscarf-Wearing Women

Abstract This article analyses and criticises the latest Court of Justice of the European Union (CJEU) case concerning the wearing of Muslim headscarves at work. OP was refused permission to wear a Muslim headscarf at work because her employer, a public authority, had a policy of exclusive neutrality, prohibiting employees from wearing any form of religious clothing or symbols. The CJEU judgment limits the employment opportunities of Muslim women who want to wear headscarves for religious reasons and allows member states and infra-state bodies a margin of discretion to decide whether to ban religious clothing and symbols for all employees, only for employees who come into contact with service users or not to ban such items at all; and, it ignores any possibility of the presence of gender, race or multiple discrimination. Prohibitions on religious clothing and symbols affect especially Muslim women, who are often from a non-European background and thus could amount to gender discrimination, race discrimination and to discrimination on a combination of religion or belief, gender and racial or ethnic origin.

Why Epicurean happiness is not for everyone

ABSTRACT It is often assumed that Epicurean happiness can be achieved by everyone alike. This paper offers a corrective to this view. While it is true that the Epicureans abolish traditional differences among people like those between the sexes, social classes, and so on, they also maintain that there are people who are incapable of achieving happiness because they lack a certain bodily make-up or because they do not have the right ethnic or cultural origin.